For the sake of SMA Children , Sign this petition

For the sake of SMA children, I ask you to sign this important petition and to spread everywhere online.

Families of children suffering from Spinal Muscular Atrophy "SMA" have been sending pleas for years now to everyone in order to save their children from that cruel disease.

Launched by one of the mothers of SMA children, the petition is calling Egypt's President El-Sisi and Minister of Health Hala Zayed to issue a decree to include SMA's medicine in the medical insurance in Egypt.

Most of you do not know that SMA has got the most expensive treatment system in the whole world and with the struggling Egyptian economy, it is like fighting an impossible battle but the families fight it either way.

Late Khadijah, one of the famous SMA
children on social media.

Parents of SMA children use social media asking for donations and help but this is not a solution.

The petition asks the Egyptian government to provide Sprinza drug which helps SMA children a lot to improve their health condition.

Its only problem is its price tag. Its costs in the United States starts at $ 750,000 in the first year and $375,000 annually after that.

Already I believe that as Egypt heads the African Union this year, it is a good opportunity to speak not only about SMA Egyptian children but rather African SMA children in general.

The Egyptian government can go in talks with the company producing Sprinza with the help of the UNICEF and WHO to get it for a better price.

It is unfair by all measures that SMA children suffer from it in that way in third world countries.

A rare neurological genetic disease, even the richest countries in the world provide its treatment in its medical insurance system for some of its types.

Currently, SMA is making headlines again with its newly approved medicine, Zolgensma.

Newly approved by FDA, Zolgensma is dubbed rightly so as the most expensive drug in history for USD 2.1 million for a single dose, yes a single dose. 

BY the way, Khadijah Mamdouh who was one of the girls mentioned in the 2018 Ahram Online report passed away earlier this year following a long struggle with that terrible disease. She is the second kid I have read about to die in the past three years because of it. 

Ramadan Arabian Nights 2019 : Aladdin " Aladdin saves the day " Ep.10

Good evening or Good afternoon or Good morning where ever you are now and reading this post.
First of all, you can refresh your memory and see how Aladdin found his beloved Tot.
Tonight we are to finish our second tale for this year, the tale of Aladdin and the magical lamp.
Here is the tenth episode of Aladdin and the magical lamp or episode no.161 of the Egyptian State Radio’s One Thousand and One Nights show in Arabic after the break.

Ramadan Arabian Nights 2019 : Aladdin " A Qareen’s help " Ep.9

Good evening or Good afternoon or Good morning where ever you are now and reading this post.

First of all, you can refresh your memory and see how Aladdin lost his princess as well as his lamp.
Here is the ninth episode of Aladdin and the magical lamp or episode no.160 of the Egyptian State Radio’s One Thousand and One Nights show in Arabic after the break.

Ramadan Arabian Nights 2019 : Aladdin " An new lamp for a old lamp " Ep.8

Good evening or Good afternoon or Good morning where ever you are now and reading this post.
First of all, you can refresh your memory and see how Aladdin got married his beloved princess.
Here is the eighth episode of Aladdin and the magical lamp or episode no.159 of the Egyptian State Radio’s One Thousand and One Nights show in Arabic after the break.

Ramadan Arabian Nights 2019 : Aladdin " Make way for Prince Aladdin" Ep.7

Good evening or Good afternoon or Good morning where ever you are now and reading this post.
First of all , you can refresh your memory and see how Aladdin reacted when he knew princess Tot married someone else.

Here is the seventh episode of Aladdin and the magical lamp or episode no.158 of the Egyptian State Radio’s One Thousand and One Nights show in Arabic after the break.

Ramadan Arabian Nights 2019 : Aladdin " Genie , bring me the princess" Ep.6

Good evening or Good afternoon or Good morning where ever you are now and reading this post.
First of all , you can refresh your memory and see how Aladdin fell in love with Princess Tot here.
Our Aladdin is darker than the Aladdin we know.
Here is the sixth episode of Aladdin and the magical lamp or episode no.157 of the Egyptian State Radio’s One Thousand and One Nights show in Arabic after the break.

Chronicles of Egyptian Places : The Last Days of Building No.54 in Cairo’s Boulaq Abu Ela

Do you remember that very old watch shop I once spoke about in summer 2018 and how it was going to disappear as its building was going to be demolished by the government ?

The building , officially known as No.54 in the street was demolished as part of the governmental plan to revamp Maspero triangle area but before it was demolished , I was lucky enough to document some of its last moments and to know more about its history or rather its people.

Specifically the shop owners who owned shops in the buildings , most of them spent half of their lives in that buildings maintaining their shops for more than five decades and for that they tried to fight the battle till the end.

It was a lost battle in times where no mainstream media or social media can raise their concerns and screams to the officials.

Here is in my very bad and shaky video, I focused on two stories: the story of S. Hinhayat Clock shop and the story of Hajj Hosni, the mannequin maker.

P.S: I know it is not the best video or audio recording or editing but I hope you like it and share it.

Building No.54 was originally built in 1906 in “Avenue Boulaq” or “Boulaq street” in Boulaq Abu Ela district.

Despite Maspero Triangle is portrayed in the mainstream media now as low-income shanty town area “Which is partially true”, the area had several European Neo-Classical buildings especially in the area adjacent to Avenue Boulaq.

Once I spoke with a taxi driver who was raised there and he told me that those buildings were owned by foreigners who left Egypt after the 1952 Coup.

I think due to the fact that the Old Italian Consulate is located there, there were many foreigners or rather Italians who lived in the area.

An interesting fact that that Italian Consulate complex which included a school in the past was turned in to prison for foreigners or Italians by the British occupation during the World War II.

Back to our building, in 1907 a Bulgarian Jew watchmaker called Solomon Hinhayat inaugurated his clock shop in Boulaq street at Building No.54 according to shop’s last shopkeeper and owner Essam Solomon.

Solomon Hinhayat in the last days of his shop 

Later that street was renamed  Fouad street named after Egypt’s King Fouad I and during that era, it became one of Downtown Cairo’s busiest and commercial street.